That is a nice article. I wish you both luck with your group.
I really want to read the article. But I am having great trouble loading it. Nothing seems to be coming up, oh well, I will try again at another time. Are you happy with what she wrote?Jen
I can't actually access the paper - but am glad to hear that you thought the article was good.
good luck, good luck, good luck.
This sounds apalling. Absolutely apalling.The worst pain I ever experienced was sciatica - and although it felt as if it were going on for ever at the time - of course it didn't.There is one point in the article, apart from the pain, I'd like to comment on.I have epilepsy. Like Trigeminal Neuralgia it is a 'hidden' disability.When I first had fits, people thought I was fainting (therefore of weak personality!). They thought I was suffering from some kind of psychsomatic hysteria (therefore of weak personality!). The doctors didn't take this approach, of course, but, from experience, I now know there are extra hardships involved when people can't SEE what you are going through and would guess this adds to the challenge of living with Trigeminal Neuralgia too. No-one else, literally, can feel your pain.I'm so glad this support group is forming. Sometimes, when I come across anyone with epilepsy of a kind similar to my own, I find myself saying (horror of horrors!)things like 'I'm so glad!'. Of course, I don't mean I'm glad they have epilepsy too - what I'm really expressing is an upsurge of fellow feeling.Best wishes to you and your husband and the group.Esther
Oh I am so glad I read the article. I had absolutely no idea about this condition at all. How absolutely horrendous that nothing can be done to ease the pain. It is fantastic about the support group. I really hope that goes well.
Yes.. I was very happy with what she wrote. So was Far Guy..he was so worried it wouldn't be expressed correctly.Thank you for taking the time to read the article!(if it gets lots of hits the AP may pick it up..and then it could reach even more people) Jen, try the main page of the paper http://www.parkrapidsenterprise.com/The article with the handsome totally bald guy! Esther, I knew you would understand the totally looking normal part! Yes, I understand the feeling..I am happy we find others..just not happy they have it also and are suffering. It is a hell of a way to make friends. Support is so very important.Awareness is so important..a friend or a relative could have this and be misdiagnosed for years. So just be aware!! :)
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