Sunday, September 22, 2019

On hold

Far Guy is On Hold for his Lung Transplant.  He has two types of fungus growing in his lungs.  He will be on medication for 8 weeks and then they may or may not take him off hold...it all depends how well the fungus responds to medication.  (The fungus revealed itself after 40 some days in culture from sputum samples taken on August 5 2019)

The Transplant Team discussed Far Guy again.   His Transplant Coordinator and his Pulmonary Transplant Dr thought he would be a good candidate for two lungs now...that would get rid of the fungus completely. Dr SH the Thoracic Surgeon said "No way that would make me too nervous." So they decided to put him on hold...which is better than being taken off the list.

More sputum tests were accomplished Thursday and Friday and blood tests are scheduled on Monday...and we get a new Doctor added to the mix...and Infectious Disease Specialist.

To say we are discouraged is an understatement.

It is our hope that once they get the fungus under control his breathing will improve.

One day at a time.

Deer poop amongst the small crabapples
Far Guy got his Shingrix shot last Wednesday....shots are in short supply...the VA Clinic happened to have one. 

Previously we both had Zostavax shot...but now they say you need the new one because it is more effective. 

Far Side

28 comments:

  1. So sorry to hear this. I hope you can enjoy life one day at a time and keep your spirits up with this delay. The waiting must be so hard. Love and prayers coming your way ....

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  2. Bummer. So sorry you have to have this Setback. I am praying for you both. xx

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  3. So sorry to hear this news. Prayers for improvement - let's beat this fungus! Only on hold - I am looking at that as optimistic we can slay this fungus! Continued prayers for both of you.

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  4. The setbacks and waiting must be awful. I will pray that fungus goes away....remember that song "there's fungus among us"? Little did we know! Like Cynthia said....just enjoy the moment and try not to look too far down the road. Rest, take it easy and get over your colds...that can't be helping. I'm fighting something off; very tired, sneezing and headache. I even took a nap yesterday! I know! I never take naps! LOL!

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  5. I'm so sorry to read this news. I will be praying that the fungus goes away so the hold can be removed. Also, that you will both feel God's peace in this season of life.
    Many blessings to you both.
    Betsy

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  6. Oh, no. The waiting must be awful.

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  7. I had to look up details on that kind of infection. Interesting reading about it, but not a good thing to have. It must be a horrible disappointment and I am keeping my fingers and toes crossed for a very good outcome.

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  8. I am sorry you have had this setback. Hopefully things will turn around soon for the better.

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  9. Another setback, disappointment, and cause for worry, not a good thing. You do have lots of people pulling for you if knowing that helps.

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  10. Darn it. Although, finding the infection is a good thing...now for the meds to work and to work quickly!!!

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  11. The transplant process is a delicate dance - one step forward, two back and then reverse. Don't get discouraged.

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  12. More waiting. But maybe getting that fungus under control will help his breathing. Praying for FG.

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  13. What a let down. So sorry. I hope the specialist can get rid of this fungus. Or maybe he'll end up on the double lung list after all. Something positive. More waiting is better than being off the list, of course. We'll all be praying FarGuy gets rid of this and can breathe better--soon! Love and hugs!!

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  14. I'm sorry for this setback. But as you say, being 'on hold' is better than being taken off the list.

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  15. I am praying for you both! God bless you both!

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  16. I am sorry to read about this setback but he does need to be 100% before he is opperated on

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  17. Sorry to hear this news. Hope you both get over the colds and can relax (!) Good thoughts coming your way from down south.

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  18. How disappointing! I am sorry to hear about this but if there is a problem that can be fixed it is good to get it taken care of before a transplant. As others have said, it is one day at a time. You both remain in my prayers as always. Keep thinking positive - that alone will help you both.

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  19. So sorry about the hold. A dear friend went through that too, but he got his transplant in the end so think positive!!

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  20. This is a real roller coaster ride. I hope things get solved.

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  21. Oh my....I'm so sorry to hear that far guy is on hold now and praying that he will never be taken off the list! How disappointing for both of you. May everything work out well with a bit more time to sort things out. And praying the fungus will respond well to the medication! Trust that things will work out!

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  22. :( sorry on this news! Now to get that fungus gone!

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  23. One foot in front of the other, one day at a time, one more thing to take care of. Hang in there. No one said it would be easy but, it's got to be so very frustrating. Keeping you both in my thoughts.

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  24. I'm so sorry about this new development. Just so terribly frustrating. I continue to pray and send my love to you both.

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  25. Sorry... At least he's still technically on the list though, like you said. Hope they get rid of the fungus quickly.

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  26. Sorry to hear about the fungus infection. Very glad to hear Far Guy is still on the transplant list.

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  27. Well, at least now they know what to target. Hopefully, that med will do its work quickly.

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