Far Guy has daily medication adventures...with Doctors switching meds here and there...and one Doc cannot do it all ...it has to come from the Doc that originally prescribed the med...doesn't help that one Doc is on vacation. This Lung Transplant "on hold" is for at least 30 days but that may stretch to 60 or 90 days ...it just depends on what future sputum samples show. One of the U of MN Doctors ordered a med from our mail order pharmacy $7.00 for 10 pills vs $1.00 or less at our local pharmacy...I know the instructions for ordering meds is confusing but I made sure it says IN HIS CHART short term meds from local pharmacy Long term meds 90 day supply from Mail Order Pharmacy....obviously someone did not consult the chart. Idiots...
Far Guy has not started the anti fungal medication it has not arrived yet...I think we are going on the third week this week...talk about a slow frustrating process... days are being wasted here people. Let's get on with the proper meds and do this thing.
I wish people (Doctors and Transplant Coordinators) would just do their jobs. Consult patients charts and order the correct medications. Is that too much to ask? AND these are the people we are going to trust to do a Lung Transplant...UFFDA...I am going to have to advocate ALL the time and double check everything.
Far Guy has now switched over from Tegretol to Neurontin for his Trigeminal Neuralgia. He had spots before his eyes and a migraine for a short time after his first pill... and so it goes.