Yes it snowed, but it mostly melted.
Chance and the snow along the edge of the woods.
I didn’t even move the snow shovel to the front door yet. My sister in law has hers all ready but she lives further north than me!
Alpha 1 Update:
Far Guy has a new Pulmonary Doctor, his last one went into Sleep Medicine so we were without a Doc for a bit. The new one is from Poland, he speaks English quite well and is easy to understand. (He went to Medical School in Iowa) I think he will be okay, Far Guy got a Kenalog Injection..it seems to help with his shortness of breath. We now have antibiotic and steroids on hand in the event that Far Guy gets sick …we are to begin the medications immediately…the instructions were IF AFTER FIVE DAYS HE IS NOT BETTER HE NEEDS TO BE IN THE HOSPITAL. I like that I have a hard and fast rule to follow.
The every Thursday Infusions are going well for the most part. They are not as scary as they first were…Far Guy is working on getting the needle sticks down to one good one…he has done four sticks and two sticks…so he is improving. I made a step by step list of how things are done so he can refer back to it if need be. Part of the problem is that his port moves around in his chest a bit…so you have to make sure you anchor it. He had Lynn at the infusion center check it out and she agrees..the port moves. The infusions always tire him out. We stick pretty close to home Thursdays and Fridays…only going for a short ride with the dog.
900+ people a year have to give plasma so that this treatment can continue for just one individual.
I have been in contact with my cousin Kurt who is involved in Medical Research. I also mentioned this observation to the new Pulmonary Dr as his wife is a Neurologist.
Since beginning the infusions with the Aralast for the Alpha 1 Antitrypsin Deficiency the Trigeminal Neuralgia pain is much less. Is there a connection? Our regular Neurologist says “No they are not related.” I am not so sure…how many patients are there out there that have both of these rare disorders? 1 out of 15,000 people get Trigeminal Neuralgia and 1 out of 5,000 people have Alpha 1 Antitrypsin Deficiency.
What are the odds that one person would get two rare disorders? What are the odds that the treatment for one of the rare disorders would make a difference in the other?
I don’t begin to understand all this…but perhaps it will benefit someone else someday.