Far Guy and I are watching Vikings Valhalla on Netflix at night.  It isn't as funny as Norseman but still entertaining enough for us......

Thursday is Far Guys infusion day.  The infusion protects his lungs for 6 days...it replaces the protein that cannot escape his liver to pro...

Far Guy is a bit of an expert on Rare Diseases as he has two of them.  Seems he won the Rare Disease Lottery. The last day is February i...

This is a photo of Far Guy and Chance before Far Guy was diagnosed with Alpha-1 Antitrypsin Deficiency. 2013 We have returned from Th...

Far Guy got the results of his DNA story. England, Wales and Northwestern Europe 69 % Germanic Europe 17 % ( Northwest Germany) Norway 6 % F...

Far Guy had surgery yesterday morning to replace the port in his chest.  His old port (his second one) was really hard to stick (it felt lik...

Yesterday was infusion day.   I was able to bring in all the supplies and the “stuff” to infuse Far Guy in the hospital yesterday.  The Nurs...

We had three doctors appointments this past week, so far only one appointment for next week!  A week off for me as Far Guy can go to his Phy...

We spent a morning at the clinic in Fargo this week.  Far Guy is in a five year study.  This is his second year.  They did a CT Scan of his ...

It is the end of another week.  Not sure what was accomplished this week other than the usual…mowing, laundry, cooking…  repeat when necessa...

It was a warm day yesterday, the humidity hung in the air all day long.  Sometimes the humidity was so heavy it misted and droplets formed o...

Today is a day set aside to acknowledge rare diseases. A Rare or Orphan Disease is : A disease or disorder that affects 200,000 or less p...

Right or wrong we all have to make decisions. We decided to send Far Guy to surgery to have his port replaced.  It will happen soon.  He a...

Hours just seem to slow to a crawl when you are in the hospital. We spent most of the day there yesterday for a treatment of special DRANO ...

The Redpolls left just ahead of the warm front that visited us.  Eighty pounds of thistle seed later they have deserted us. It was a week....

Yes the rain turned to ice and now the walk is slippery…but we had some sunshine. We almost had some color near sunset too. I scraped on...

Yesterday it was frosty and foggy.  It warmed up to 19F or –7C eh!  A warm front moved in.  There were patches of freezing rain.  Wonderful...

We traveled up north for Adam's basketball tournament.  Have I said before that Adam is quite tall for his age?  Well he is and with som...

Yes it snowed, but it mostly melted. Chance and the snow along the edge of the woods. I didn’t even move the snow shovel to the front doo...

We have been waiting for our youngest daughters genetic test results for the Alpha 1 Antitrypsin Deficiency.  She is an MZ…the M from me and...