tag:blogger.com,1999:blog-5456722259350114571.post1320982895786326635..comments2024-03-28T18:50:23.094-05:00Comments on Far Side of Fifty: TN AwarenessFar Side of Fiftyhttp://www.blogger.com/profile/07995757632158408442noreply@blogger.comBlogger18125tag:blogger.com,1999:blog-5456722259350114571.post-91439344235123311812013-10-13T17:41:47.421-05:002013-10-13T17:41:47.421-05:00Ever since I started following your blog I have be...Ever since I started following your blog I have been praying for Far Guy...I started about the time you found out...like you I pray for a cure!<br /><br />Linda<br />http://coloradofarmlife.wordpress.com <br />http://deltacountyhistoricalsociety.wordpress.com<br />Terry and Lindahttps://www.blogger.com/profile/11016496778254072639noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-39903207103339814982013-10-09T08:26:01.084-05:002013-10-09T08:26:01.084-05:00No, it is not legal in Minnesota:(No, it is not legal in Minnesota:(Far Side of Fiftyhttps://www.blogger.com/profile/07995757632158408442noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-58298824213724751252013-10-08T22:22:18.440-05:002013-10-08T22:22:18.440-05:00I was totally UNaware of TN. It sounds awful!
Jus...I was totally UNaware of TN. It sounds awful!<br />Just a thought from a person living in a pot state - have you tried medical marijuana?Linda Reederhttps://www.blogger.com/profile/07665601809156707572noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-65065849792569390712013-10-08T18:46:26.282-05:002013-10-08T18:46:26.282-05:00I am so glad you wrote this, Far Side. Lately, I&#...I am so glad you wrote this, Far Side. Lately, I've been wondering how your Far Guy was doing with TN. I know this is a challenging condition to face in general, but ever since you've introduced us to Far Guy, it's an entirely different thing to think of a person we know (well, online) having to go through all of this. From time to time, I think of him, pray for him, and wonder how things are going for him. Since you haven't mentioned much about it lately, I was hoping he was having better days. This sounds like something you shouldn't wish on your worst enemy. Wishing for a cure, or at least a manageable treatment plan to hold those symptoms at bay...Jacqi Stevenshttps://www.blogger.com/profile/03471698670217119444noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-60112722278926112802013-10-08T18:02:57.973-05:002013-10-08T18:02:57.973-05:00You give an excellent description of TN. It sounds...You give an excellent description of TN. It sounds absolutely miserable. I wonder what percentage of people have it. There are many things that we know what they are but not how to treat them. Too many medications make you feel worse for other reasons. Redhttps://www.blogger.com/profile/17996243850279671523noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-21020107805374117152013-10-08T15:33:14.170-05:002013-10-08T15:33:14.170-05:00Thanks for sharing the perspective of someone on t...Thanks for sharing the perspective of someone on the 'other side'...of the TN fence, that is. I too have the more rare form of the rare disorder - though my ATN pains were caused by the surgeries meant to fix my condition. And they wonder why I don't like the idea of another knife in my head!<br />I've done the round of meds - hated the side effects. Had the mvd(x2) and a rhyzotomy - all failed. High does of lyrica and I take T3s or marijuana. Tried everything else to no avail. At least I can pretend to take part in things now... Lots of 'parenting from the couch'. <br />Thanks for sharing this story!! Anonymoushttps://www.blogger.com/profile/06602716158593047628noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-58956212837665000782013-10-08T14:44:49.532-05:002013-10-08T14:44:49.532-05:00My mom had this and Dilantin helped her a lot.My mom had this and Dilantin helped her a lot.Rykerhttps://www.blogger.com/profile/18424717988638341638noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-78338345362647763692013-10-08T13:07:24.904-05:002013-10-08T13:07:24.904-05:00One of the best features of blogs and the Internet...One of the best features of blogs and the Internet is that we learn about rare conditions and can communicate with others who are going through the same thing. It helps to know we are not alone.<br /> I have a grandson with Ehrler's-Danslow syndrome, another rare condition. If we all help each other, maybe someone will come up with more effective treatment for these disorders.Pauline Persinghttps://www.blogger.com/profile/16774940797880184764noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-57779996572004378572013-10-08T11:37:11.841-05:002013-10-08T11:37:11.841-05:00I am very happy that this blog has educated more p...I am very happy that this blog has educated more people about Trigeminal Neuralgia. It is not all that rare but many have not heard about it and some of these are doctors and dentists. Thanks for spreading the word.<br />Shirley H.Unknownhttps://www.blogger.com/profile/14808886522199455996noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-16167966917241935032013-10-08T10:37:31.586-05:002013-10-08T10:37:31.586-05:00I learned something today as I have never heard of...I learned something today as I have never heard of TN. It is wonderful that Chance recognizes the signs and looks after Gene. I pray that there will be a cure for this disease. It sounds awful. Grandma Barb's This and Thathttps://www.blogger.com/profile/06639649601385700411noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-3878301238577040762013-10-08T10:11:32.760-05:002013-10-08T10:11:32.760-05:00I too have been educated about that condition from...I too have been educated about that condition from your blog. Thinking of Gene and all others who suffer from it. Hope some sort of cure is found soon.Karenhttps://www.blogger.com/profile/08938874724231860923noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-54274406264466856352013-10-08T09:02:11.874-05:002013-10-08T09:02:11.874-05:00I never heard of TN before. It sounds just awful....I never heard of TN before. It sounds just awful. I will hope for a cure also.Travels with Emmahttps://www.blogger.com/profile/00411769980205792011noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-27039141010070678532013-10-08T08:37:34.264-05:002013-10-08T08:37:34.264-05:00Forgot to say I usually sign off with Shirley H.!Forgot to say I usually sign off with Shirley H.!Unknownhttps://www.blogger.com/profile/14808886522199455996noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-21355281166232332542013-10-08T08:36:50.000-05:002013-10-08T08:36:50.000-05:00Hi:
I am the Shirley that you mentioned along with...Hi:<br />I am the Shirley that you mentioned along with Lisa. Thank you for thinking of us!<br />I still have "Anesthesia Dolorosa" Gene - you remember I had surgery (Balloon Compression) that took away the lightning like pains but left me with perpetual sort of numbness of the right side of my face and scalp. There is constant burning, itching, a sort of spasm like grip that never goes away day or night; It is not pain but ever present and very distracting There is no such thing as ignoring it as you can with some maladies. MY TN side eye is affected and waters and burns all the time. I have better vision in that eye than the other one says the eye doctor. So the TN has not affected my vision thank goodness. It just FEELS like it is affected if you know what I mean and is very distracting. I have not seen a neurologist about this because am afraid that things could be made worse with any further "treatment" but maybe one of these days I will see one. So Gene you know how I feel for and with you. Here's hoping that some day there will be some way of treating TN.Unknownhttps://www.blogger.com/profile/14808886522199455996noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-40697003448250315822013-10-08T08:11:35.502-05:002013-10-08T08:11:35.502-05:00This all is new to me as well. It's certainly...This all is new to me as well. It's certainly evident Far Guy is a very brave man.....troutbirderhttps://www.blogger.com/profile/14087811292280881959noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-40642983332390647082013-10-08T07:25:47.640-05:002013-10-08T07:25:47.640-05:00I had never heard of the disorder before I learned...I had never heard of the disorder before I learned of it on your blog. It sounds just awful. I'm so glad that Far Guy has you and Chance to help him cope. What a strange illness! And it never goes away or gets better? Mercy!DJanhttps://www.blogger.com/profile/07152183871573797791noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-73421544719708978432013-10-08T07:12:42.137-05:002013-10-08T07:12:42.137-05:00I pray they find a cure. As a chronic pain suffer...I pray they find a cure. As a chronic pain suffer I kind of know what Far Guy goes through. Never give up hope or trying to find something that helps.linda mhttps://www.blogger.com/profile/08203742811516417039noreply@blogger.comtag:blogger.com,1999:blog-5456722259350114571.post-21382687269426941322013-10-08T05:54:52.458-05:002013-10-08T05:54:52.458-05:00I pray for a cure, too. Gene had TN about a year ...I pray for a cure, too. Gene had TN about a year by the time I began blogging. I love the ribbon/slogan above...never give up hope.<br />Love to you guys.Anonymousnoreply@blogger.com